I haven't written an update about my son in a while and thought today would be a good day to due just that. He has been on his medication for two months now and he is doing pretty well on it. Still having some issues with the sleep,but nothing like it was before. He has not 'blown up' at me since either. He is still having moments where he gets so frustrated that he hits himself, but it is so much easier to calm him down when that happens.
He has been doing so well with his Social Worker that we are going down to 2 visits a month instead of 4. His Social Worker is very impressed with the changes that my son has made and I am as well. On the days where I forget to give him his medication I can see a MAJOR difference in him. I knew things were bad, but with him being so much more calm it never really hit me just how much a difference the medication was making. He is so hyper, off the wall, and uncontrollable when he is off the medication.
We decided that we would put him back on his ritalin as well. However, instead of 5mg at 4pm I cut them in half and he gets 2.5mg at 2pm. That was he is still focused when I am trying to get him to do his homework but it has worn off by the time bedtime gets here. The nurse from his school gives it to him as well.
I am still having MAJOR issues getting him to eat at school. My dad and I took him to the store to pick out his own lunchbox and other things to pack lunch in, I buy food I know he will eat, the nurse has granola bars I gave her for him to eat at lunch, and he still isnt eating. When I packed his lunches he would come home not having eaten anything that I packed. I have got to get him to stop losing weight or we have to change his medication and that is not something I am looking forward to. In the past 2 months he has lost at least 8 pounds and 6 or 7 of those were in the first month. He is at his 'normal' weight now, but to me he looks so thin. I am used to him having a small pudge tummy and 'thunder thighs'. Now he has what I call chicken legs and the tummy pudge is gone.
My mom did make a suggestion to me though. I could make him 'milkshakes' with ice cream, protien powder, peanut butter or fruits, and fiber. Then he could have those for break fast. I think its a great idea, but I think milk/dairy is what is causing him to still get croup at his age. Next Monday he sees an allergy specialist for me to find out what food he is allergic to so I know what to stop giving him and he should stop getting croup after that. I guess I could always use soy ice cream and soy milk to make the 'milkshakes.'
He is doing great in OT therapy as well. They are working on building his muscles in his core, arms, and shoulders. They are always working on his handwriting. He has gotten so used to writing in a mix of upper case and lower case that when he has to write everything in lower case he freezes and shakes because he can't remember how to do it or how the letter is supposed to look. They are going to start working on his sensory and motor issues with brushing his teeth. He hates the feeling of the bristles on his gums and has a slightly difficult time figuring out how to hold the tooth brush depending on the teeth he is trying to clean.
Other than all of this we are doing great at dealing with this. My son is happy, aside from being teased at school, and things in the house are finally calm. I am so happy with myself that I finally got him tested. For those that are on the fence about having their kids tested, take if from me and DO NOT wait!!
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